I haven’t written a post in forever. That is because, until two days ago, I was back with my family in the US. It wasn’t planned and it turned out to be a horrible trip.
My aunt and my mother have regular talks on the phone. Usually my aunt will call my mother because Dad doesn’t like spending that much money on a long distance call. So it came that, on Monday, October 17th, my aunt went ahead to call my mother. My brother picked up the phone, as she told me later, and when she asked for my mother he explained that she wasn’t home but in the hospital. My sister was very ill and needed Mom to be with her.
You see, my sister was born with PKD. That’s a kidney disease which causes the kidneys to grow larger than normal and to be filled up with cysts instead of normal, healthy tissue. It’s a condition you can live with some time, but you’ll need a new kidney at some point. It can influence other organs as well sometimes (due to abnormal kidney size and function). Patients bodies must be cared for very well, they may not do too much physical exercise and should avoid too much contact with other people (bacteria). One thing that comes with this condition is almost constant urinary tract infection infections especially in females. My entire female family is beaten with UTI issues, as I am, but I don’t have a severe condition. I simply have many UTIs. It’s quite annoying, if you had one of them, you know what I’m talking about.
Either way, my sister always had many UTIs. We needed to be very careful with that as the bacteria might infect the kidneys and cause severe illness in her (unlike me, who didn’t have this specific issue with the UTIs). She needed quick medication whenever she had one, and that was often.
My brother told my aunt that apparently a simple UTI moved up to the kidneys, causing my sister to be very ill at that point. She was admitted to the hospital, where they found that the illness had almost destroyed one of her kidneys. It didn’t look too good for that kidney at this point.
My aunt filled me in right after she hung up. I was shocked. I mean, my sister had been to the hospital many times, but never had I heard such bad news from her. I urged my aunt to call again to find out more. She got my siblings to call Mom at the hospital, who called my aunt back a while later. My aunt put the call on speakers for me to hear. I just wanted to listen but my Mom started crying and I couldn’t help myself but talk to her. She told me that it looked bad and that they were going to wait the night for improvement but they’d probably have to remove the kidney. My aunt offered me to pay for a ticket back to the US and on Tuesday morning I had decided to go for it.
I didn’t know which hospital she was in – not even if she was in a bigger hospital in some other city than the one my parents live in. I didn’t know anything really. I rented a car at the airport and decided to drive home to see if I could find any family members, friends or neighbors there.
Luckily most of my family was home. A family friend was over, helping out with my siblings. She immediately let me in without asking where I came from, what I wanted or anything. My siblings were very happy to see me, though they were very confused at my looks. I wore skinny jeans, a shirt, and after all I cut my hair much shorter than it was when they last saw me. It has a different, darker color now too. I looked a bit alien to them. The happiness of seeing me again quickly vanished as I asked them what happened. They didn’t know much more than what my brother already told my aunt, except that my sister was still at the hospital, my Mom was there too, Dad had to work. They could tell me where she was and I got ready to head out again to see my sister. They held me back for a bit, asking me a lot of questions about my sister, none of which I could answer.
I managed to leave an hour after I arrived at the house and headed to the hospital. I quickly found out where she was, but couldn’t go in just like that. After all, I looked different in ways of dress and behaviour than the rest of my family. They weren’t sure if I really was the sister and informed my mother to come see me and confirm who I was. My mother came out to me, looking confused, shocked, worn out, teary, horrible. She told me that my sister had surgery the day before, the kidney had to be removed, no chance otherwise. She wasn’t awake yet, she was put into a coma, as the infection was still raving in her body. I was allowed to see my sister and I almost wish I didn’t. I have never seen somebody look so pale, so without any life. I don’t know much, it was all a blur. My Dad came to see her with some of my siblings. They weren’t allowed to go in at that point due to the danger of bringing in more infection.
On Friday, October 21st of 2011, my little sister died at the age of 15 due to kidney failure.
I’m sorry for cutting this off right here, I just don’t have any more in me at this point. I will write more once the time comes.